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The ice bucket challenge can be silly. There are people doing it, because they want to be trendy, not because they care about ALS. They aren't donating, but it spreads awareness. There are a lot of people who aren't aware of ALS, and for people dealing with ALS, it makes them feel like a weight is lifted off their shoulders, just spreading awareness is something they are SO grateful about, it's making a difference, slowly.
It's not easy knowing you're going to die, knowing there's nothing that can save you, having a time limit over your head. It's depressing, it makes you feel worthless, like you weren't meant to be here in the first place and now you're just being killed off. There's no cure, it's so rare that people aren't willing to invest the millions of dollars it takes to find and make that cure. Those people can feel themselves slowly dying, and there are people still finding reasons to live, and these challenges are giving them more and more hope. It may seem silly, but it impacts these people's spirits so much. This silly notion is giving people hope, it's making the miserable a little less depressed, it makes the weight of knowing you're going to die a little less heavy.
Whoever disagrees with me can give me as much hell as they want. I firmly stand in what I've said.